Huntington's Disease Society of America Center of Excellence

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  • Huntington Disease Support Groups

    General Huntington Disease Support Group

    When: Fourth Sunday of each month from 1 to 3 pm (with some exceptions, see below for schedule)

    Where: Della Ruppert Conference Room (6612 John Colloton Pavilion - take Elevator H to Level 6)

    Description: The Huntington Disease Support Group at the University of Iowa Huntington's Disease Society of America Center of Excellence welcomes individuals affected by Huntington disease as well as their families and friends. A typical support group meeting consists of informal discussion, breakout sessions, and a guest speaker. For information about the upcoming support group, please visit the University of Iowa Huntington's Disease Society of American Center of Excellence support group event page on Facebook.

    Click here for an article on how HD support groups like this operate and how you might benefit from attending.

    Questions or concerns? Please call Amanda Miller at 319-335-6640, Shawna Feely at 319-353-4307 or email hdcenter@uiowa.edu.

    Schedule:

    May 2014: No meeting (Memorial Day weekend)
    June 29, 2014
    July 27, 2014
    August 24, 2014
    September 28, 2014
    October 26, 2014
    November 23, 2014
    December 2014: TBA (holiday party)

    Please be aware that there are occasional changes to the schedule.

    At-risk/Presymptomatic Huntington Disease Support Group

    When: Every other month (tentatively)

    Where: Della Ruppert Conference Room (6612 John Colloton Pavilion - take Elevator H to Level 6)

    Description: This peer-led support group supported by the University of Iowa Huntington’s Disease Society of America Center of Excellence is designed to provide support to individuals who are at risk of developing Huntington disease (which includes both those who don’t know there Huntington disease gene status as well as those who do), as well as their families and friends. The facilitators provide a safe, confidential environment that encourages discussion about Huntington disease and what it’s like to live at risk for Huntington disease.

    Schedule:

    Exact dates and times vary. Please contact peer facilitator Brandon Rogers at 319-333-2211 or via email at bjrogers@healthcare.uiowa.edu, or call the University of Iowa Huntington's Disease Society of America Center of Excellence at 319-353-4307 or email us at hdcenter@uiowa.edu.

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