Ophthalmology and Visual Sciences

University of Iowa to host national meeting for Bardet Biedl Syndrome Family Association

On June 26-28, 2014, families impacted by Bardet Biedl Syndrome (BBS) will gather in Iowa City for an educational conference offering the latest information on BBS research and strategies for living with the condition. The conference will also provide networking and support opportunities for individuals who attend.

BBS is a genetic disorder that affects many parts of the body including the retina. Symptoms include vision loss, obesity and polydactyly (extra fingers and/or toes).  It is a rare condition that is estimated to impact between 1 in 140,000 to 1 in 160,000 newborns in most of North America and Europe.

Researchers from the UI Stephen A. Wynn Institute for Vision Research will be joined by experts from other leading institutions as presenters. Included are University of Iowa Children’s Hospital specialists, Dr. Arlene Drack and Dr. Val Sheffield.  Drack co-directs the Eye and Ear Genetics Clinic and Sheffield is a Howard Hughes Medical Institute investigator and leading authority on BBS.

For more information or to register for the conference, visit www.bardetbiedl.org and click on 2014 BBSFA Conference.

Conference and Registration Information.